Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research.

Mhairi Aitken, Mary Patricia Tully, Carol Porteous, Simon Denegri, Sarah Cunningham-Burley, Natalie Banner, Corri Black, Michael Burgess, Lynsey Cross, J.H. van Delden, Elizabeth Ford, Sarah Fox, N.K. Fitzpatrick, Kay Gallacher, Catherine Goddard, Lamiece Hassan, Ron Jamieson, Kerina H. Jones, Minna Susanna Kaarakainen, Fiona Lugg-Widger & 11 others Kim McGrail, Anne McKenzie, Rosalyn Moran, Madeleine J. Murtagh, Malcom Oswald, Alison Paprica, Nicola Perrin, Emma Richards, John Rouse, Joanne Webb, Donald Willison

Research output: Contribution to journalArticleScientificpeer-review

Abstract

This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.
Original languageEnglish
JournalInternational Journal of Population Data Science
Volume4
Issue number1
Number of pages6
ISSN2399-4908
DOIs
Publication statusPublished - 14 Feb 2019
MoE publication typeA1 Journal article-refereed

Fields of Science

  • 512 Business and Management

Cite this

Aitken, M., Tully, M. P., Porteous, C., Denegri, S., Cunningham-Burley, S., Banner, N., ... Willison, D. (2019). Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research. International Journal of Population Data Science, 4(1). https://doi.org/10.23889/ijpds.v4i1.586
Aitken, Mhairi ; Tully, Mary Patricia ; Porteous, Carol ; Denegri, Simon ; Cunningham-Burley, Sarah ; Banner, Natalie ; Black, Corri ; Burgess, Michael ; Cross, Lynsey ; van Delden, J.H. ; Ford, Elizabeth ; Fox, Sarah ; Fitzpatrick, N.K. ; Gallacher, Kay ; Goddard, Catherine ; Hassan, Lamiece ; Jamieson, Ron ; Jones, Kerina H. ; Kaarakainen, Minna Susanna ; Lugg-Widger, Fiona ; McGrail, Kim ; McKenzie, Anne ; Moran, Rosalyn ; Murtagh, Madeleine J. ; Oswald, Malcom ; Paprica, Alison ; Perrin, Nicola ; Richards, Emma ; Rouse, John ; Webb, Joanne ; Willison, Donald. / Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research. In: International Journal of Population Data Science. 2019 ; Vol. 4, No. 1.
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title = "Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research.",
abstract = "This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.",
keywords = "512 Business and Management",
author = "Mhairi Aitken and Tully, {Mary Patricia} and Carol Porteous and Simon Denegri and Sarah Cunningham-Burley and Natalie Banner and Corri Black and Michael Burgess and Lynsey Cross and {van Delden}, J.H. and Elizabeth Ford and Sarah Fox and N.K. Fitzpatrick and Kay Gallacher and Catherine Goddard and Lamiece Hassan and Ron Jamieson and Jones, {Kerina H.} and Kaarakainen, {Minna Susanna} and Fiona Lugg-Widger and Kim McGrail and Anne McKenzie and Rosalyn Moran and Murtagh, {Madeleine J.} and Malcom Oswald and Alison Paprica and Nicola Perrin and Emma Richards and John Rouse and Joanne Webb and Donald Willison",
year = "2019",
month = "2",
day = "14",
doi = "10.23889/ijpds.v4i1.586",
language = "English",
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Aitken, M, Tully, MP, Porteous, C, Denegri, S, Cunningham-Burley, S, Banner, N, Black, C, Burgess, M, Cross, L, van Delden, JH, Ford, E, Fox, S, Fitzpatrick, NK, Gallacher, K, Goddard, C, Hassan, L, Jamieson, R, Jones, KH, Kaarakainen, MS, Lugg-Widger, F, McGrail, K, McKenzie, A, Moran, R, Murtagh, MJ, Oswald, M, Paprica, A, Perrin, N, Richards, E, Rouse, J, Webb, J & Willison, D 2019, 'Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research.', International Journal of Population Data Science, vol. 4, no. 1. https://doi.org/10.23889/ijpds.v4i1.586

Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research. / Aitken, Mhairi; Tully, Mary Patricia; Porteous, Carol; Denegri, Simon; Cunningham-Burley, Sarah; Banner, Natalie; Black, Corri; Burgess, Michael; Cross, Lynsey; van Delden, J.H.; Ford, Elizabeth; Fox, Sarah; Fitzpatrick, N.K.; Gallacher, Kay; Goddard, Catherine; Hassan, Lamiece; Jamieson, Ron; Jones, Kerina H.; Kaarakainen, Minna Susanna; Lugg-Widger, Fiona; McGrail, Kim; McKenzie, Anne; Moran, Rosalyn; Murtagh, Madeleine J. ; Oswald, Malcom; Paprica, Alison; Perrin, Nicola; Richards, Emma; Rouse, John; Webb, Joanne; Willison, Donald.

In: International Journal of Population Data Science, Vol. 4, No. 1, 14.02.2019.

Research output: Contribution to journalArticleScientificpeer-review

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T1 - Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research.

AU - Aitken, Mhairi

AU - Tully, Mary Patricia

AU - Porteous, Carol

AU - Denegri, Simon

AU - Cunningham-Burley, Sarah

AU - Banner, Natalie

AU - Black, Corri

AU - Burgess, Michael

AU - Cross, Lynsey

AU - van Delden, J.H.

AU - Ford, Elizabeth

AU - Fox, Sarah

AU - Fitzpatrick, N.K.

AU - Gallacher, Kay

AU - Goddard, Catherine

AU - Hassan, Lamiece

AU - Jamieson, Ron

AU - Jones, Kerina H.

AU - Kaarakainen, Minna Susanna

AU - Lugg-Widger, Fiona

AU - McGrail, Kim

AU - McKenzie, Anne

AU - Moran, Rosalyn

AU - Murtagh, Madeleine J.

AU - Oswald, Malcom

AU - Paprica, Alison

AU - Perrin, Nicola

AU - Richards, Emma

AU - Rouse, John

AU - Webb, Joanne

AU - Willison, Donald

PY - 2019/2/14

Y1 - 2019/2/14

N2 - This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.

AB - This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.

KW - 512 Business and Management

U2 - 10.23889/ijpds.v4i1.586

DO - 10.23889/ijpds.v4i1.586

M3 - Article

VL - 4

JO - International Journal of Population Data Science

JF - International Journal of Population Data Science

SN - 2399-4908

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