Abstract
Background: The 21st century has seen a proliferation of end-of-life documentary films and television documentaries that contribute to building a public image of hospice and palliative care. The way in which terminally ill patients are represented in these
documentaries creates impressions of who is welcomed to receive end-of-life care. These documentary representations have
not been previously mapped. Methods: Using quantitative content analysis, I analyzed 35 contemporary Western documentaries
and studied their diversity in the representations. I focused on terminally ill patients who are given time and space in the narration to
voice their views about the end-of-life process. I paid attention to such elements as gender, race and ethnicity, age, class, religion and
sexuality. Results: The documentaries welcomed the representations and voices of terminally ill people. Class, religion and sexuality
often had a marginal role in narration. The gender diversity of the representations was quite balanced. Regarding age, the documentaries preferred stories about working age patients for dramatic purposes, yet all age groups were represented. However, the documentaries had an identifiable racial and ethnic bias. With a few exceptions, terminally ill who had a personal voice in the narrations
were white. In comparison, racial and ethnic minorities were either absent from most of the documentaries, or their role was limited to illustrations of the general story. Conclusions: End-of-life documentaries provide identifiable access to the patients’ experiences and as such they provide emotionally and personally engaging knowledge about hospice and palliative care. While these
representations are people-oriented, they include racial disparities and they focus mostly on the experiences of white terminally
ill patients. This bias reinforces the misleading image of hospice and palliative care as a racialized healthcare service.
Original language | English |
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Journal | Journal of Palliative Care |
Volume | 37 |
Issue number | 2 |
Pages (from-to) | 190-196 |
Number of pages | 7 |
ISSN | 0825-8597 |
DOIs | |
Publication status | Published - 3 May 2021 |
MoE publication type | A1 Journal article-refereed |
Fields of Science
- ATTITUDES
- EXPECTATIONS
- HOSPICE
- KNOWLEDGE
- PALLIATIVE CARE
- RACIAL-DIFFERENCES
- diversity
- documentary film
- equality &
- hospice care
- palliative care
- race and ethnicity
- representation
- terminally Ill
- voice
- 316 Nursing
- 518 Media and communications