Health as the Moral Principle of Post-Genomic Society

Data-Driven Arguments Against Privacy and Autonomy

Research output: Contribution to journalArticleScientificpeer-review

Abstract

In Finland, as well as all over the globe, great weight is put on the possibilities of large data collections and ‘big data’ for generating economic growth, enhancing medical research, and boosting health and wellbeing in totally new ways. This massive data gathering and usage is justified by the moral principle of improving health. The imperative of health thus legitimizes data collection, new infrastructures and innovation policy. It is also supported by the rhetoric of health promotion. New arrangements in health research and innovations in the health sector are justified, as they produce health, while the moral principle of health also obligates individual persons to pursue healthy lifestyles and become healthy citizens. I examine how, in this context of Finnish data-driven medicine, arguments related to privacy and autonomy become silenced when contrasted with the moral principle of health.
Original languageEnglish
JournalCQ : Cambridge quarterly of healthcare ethics : the International journal for healthcare ethics committees
Volume28
Issue number2
Pages (from-to)201-214
Number of pages14
ISSN0963-1801
DOIs
Publication statusPublished - 22 May 2019
MoE publication typeA1 Journal article-refereed

Fields of Science

  • 5141 Sociology
  • 3142 Public health care science, environmental and occupational health

Cite this

@article{9af6ab1c5f204cfe985ad079f1a69474,
title = "Health as the Moral Principle of Post-Genomic Society: Data-Driven Arguments Against Privacy and Autonomy",
abstract = "In Finland, as well as all over the globe, great weight is put on the possibilities of large data collections and ‘big data’ for generating economic growth, enhancing medical research, and boosting health and wellbeing in totally new ways. This massive data gathering and usage is justified by the moral principle of improving health. The imperative of health thus legitimizes data collection, new infrastructures and innovation policy. It is also supported by the rhetoric of health promotion. New arrangements in health research and innovations in the health sector are justified, as they produce health, while the moral principle of health also obligates individual persons to pursue healthy lifestyles and become healthy citizens. I examine how, in this context of Finnish data-driven medicine, arguments related to privacy and autonomy become silenced when contrasted with the moral principle of health.",
keywords = "5141 Sociology, 3142 Public health care science, environmental and occupational health",
author = "Karoliina Snell",
year = "2019",
month = "5",
day = "22",
doi = "10.1017/S0963180119000057",
language = "English",
volume = "28",
pages = "201--214",
journal = "CQ : Cambridge quarterly of healthcare ethics : the International journal for healthcare ethics committees",
issn = "0963-1801",
publisher = "Cambridge University Press",
number = "2",

}

TY - JOUR

T1 - Health as the Moral Principle of Post-Genomic Society

T2 - Data-Driven Arguments Against Privacy and Autonomy

AU - Snell, Karoliina

PY - 2019/5/22

Y1 - 2019/5/22

N2 - In Finland, as well as all over the globe, great weight is put on the possibilities of large data collections and ‘big data’ for generating economic growth, enhancing medical research, and boosting health and wellbeing in totally new ways. This massive data gathering and usage is justified by the moral principle of improving health. The imperative of health thus legitimizes data collection, new infrastructures and innovation policy. It is also supported by the rhetoric of health promotion. New arrangements in health research and innovations in the health sector are justified, as they produce health, while the moral principle of health also obligates individual persons to pursue healthy lifestyles and become healthy citizens. I examine how, in this context of Finnish data-driven medicine, arguments related to privacy and autonomy become silenced when contrasted with the moral principle of health.

AB - In Finland, as well as all over the globe, great weight is put on the possibilities of large data collections and ‘big data’ for generating economic growth, enhancing medical research, and boosting health and wellbeing in totally new ways. This massive data gathering and usage is justified by the moral principle of improving health. The imperative of health thus legitimizes data collection, new infrastructures and innovation policy. It is also supported by the rhetoric of health promotion. New arrangements in health research and innovations in the health sector are justified, as they produce health, while the moral principle of health also obligates individual persons to pursue healthy lifestyles and become healthy citizens. I examine how, in this context of Finnish data-driven medicine, arguments related to privacy and autonomy become silenced when contrasted with the moral principle of health.

KW - 5141 Sociology

KW - 3142 Public health care science, environmental and occupational health

U2 - 10.1017/S0963180119000057

DO - 10.1017/S0963180119000057

M3 - Article

VL - 28

SP - 201

EP - 214

JO - CQ : Cambridge quarterly of healthcare ethics : the International journal for healthcare ethics committees

JF - CQ : Cambridge quarterly of healthcare ethics : the International journal for healthcare ethics committees

SN - 0963-1801

IS - 2

ER -