Abstract
| Original language | English |
|---|---|
| Journal | New Genetics and Society |
| Volume | 31 |
| Issue number | 4 |
| Pages (from-to) | 424-441 |
| Number of pages | 18 |
| ISSN | 1463-6778 |
| DOIs | |
| Publication status | Published - 2012 |
| MoE publication type | A1 Journal article-refereed |
Bibliographical note
WOS:000312694600007
Volume:
Proceeding volume:
Cite this
}
National interests and international collaboration : tensions and ambiguity among Finns towards usages of tissue samples . / Tupasela, Aaro; Snell, Karoliina.
In: New Genetics and Society, Vol. 31, No. 4, 2012, p. 424-441.Research output: Contribution to journal › Article › Scientific › peer-review
TY - JOUR
T1 - National interests and international collaboration
T2 - tensions and ambiguity among Finns towards usages of tissue samples
AU - Tupasela, Aaro
AU - Snell, Karoliina
N1 - WOS:000312694600007 Volume: Proceeding volume:
PY - 2012
Y1 - 2012
N2 - Recent trends in biobanking indicate that the practices associated with the collection and use of human tissue samples and related health information are increasingly becoming premised on networks of biobanks. These networks and partnerships often involve international collaborations, as well as public–private partnerships. This article reports on the results of a study of people's attitudes towards biobanking and the biomedical use of tissue samples in Finland. Three approaches were used to study these attitudes: a population-based survey, focus group interviews among members of patient organizations and short interviews with research participants. In particular, we look at the attitudes of respondents in these three studies towards the use of tissue samples and use them as a catalyst to discuss two dimensions of biomedical research: public/private and domestic/international. Our discussion highlights how notions of value related to the use of tissue samples vary and provide contrasting perspectives and ambiguity that people may have towards various types of research partnerships and the benefits that may arise from them.
AB - Recent trends in biobanking indicate that the practices associated with the collection and use of human tissue samples and related health information are increasingly becoming premised on networks of biobanks. These networks and partnerships often involve international collaborations, as well as public–private partnerships. This article reports on the results of a study of people's attitudes towards biobanking and the biomedical use of tissue samples in Finland. Three approaches were used to study these attitudes: a population-based survey, focus group interviews among members of patient organizations and short interviews with research participants. In particular, we look at the attitudes of respondents in these three studies towards the use of tissue samples and use them as a catalyst to discuss two dimensions of biomedical research: public/private and domestic/international. Our discussion highlights how notions of value related to the use of tissue samples vary and provide contrasting perspectives and ambiguity that people may have towards various types of research partnerships and the benefits that may arise from them.
U2 - 10.1080/14636778.2012.692548
DO - 10.1080/14636778.2012.692548
M3 - Article
VL - 31
SP - 424
EP - 441
JO - New Genetics and Society
JF - New Genetics and Society
SN - 1463-6778
IS - 4
ER -