@article{549d562758c647a6861688dbfe35436e,
title = "EXPLORE B: A prospective, long-term natural history study of patients with acute hepatic porphyria with chronic symptoms",
keywords = "chronic symptoms, disease burden, hepatic complications, porphyria attack, porphyrias, prospective studies, ACUTE INTERMITTENT PORPHYRIA, QUALITY-OF-LIFE, EORTC QLQ-C30, RECOMMENDATIONS, QUESTIONNAIRE, ATTACKS, COMPLICATIONS, MANAGEMENT, DIAGNOSIS, VALIDITY, 3121 General medicine, internal medicine and other clinical medicine",
author = "David Cassiman and Raili Kauppinen and Susana Monroy and Ming-Jen Lee and Bonkovsky, {Herbert L.} and Manish Thapar and Encarna Guillen-Navarro and Anna-Elisabeth Minder and Cecilia Hale and Sweetser, {Marianne T.} and Aneta Ivanova",
year = "2022",
month = nov,
doi = "10.1002/jimd.12551",
language = "English",
volume = "45",
journal = "Journal of Inherited Metabolic Disease",
issn = "0141-8955",
publisher = "Wiley",
number = "6",
}